Every day families are faced with the heart-breaking news that their child has a serious, life-threatening condition. Our Butterfly Program cherishes our youngest patients and surrounds them with expert medical care and nurturing support. We focus on enhancing the child’s quality of life through a team-oriented approach to pain and symptom management, while offering emotional, spiritual and psycho-social support to the parents and family.
We serve infants and children of all ages with a life-limiting diagnosis. Medicaid now has a program called Concurrent Care which means the child can be eligible for aggressive treatments and hospice support at the same time. We realize what a difficult and emotional time this is for families, but through a combination of active and compassionate therapies we will comfort and support the child, as well as family members and other significant people in the child’s life.
What is the Process to get help from the Butterfly Program?
Anyone can make a referral to the Pediatric Program – parent, guardian or physician. Just call our Admissions Department and a nurse will visit to see how we can best meet the patient’s and family’s needs. The child’s attending physician and our Medical Director will collaborate closely on the plan of care. Communication with the child’s doctors is vital in providing quality care.
Who Provides Care?
Our interdisciplinary Butterfly care team is dedicated to providing compassionate, family-centered care. After-hours visits are available if needed. The team consists of:
- Physicians certified in Hospice and Palliative Care
- Nurses certified in Hospice and Palliative Care
- Social workers, chaplains, pharmacists, nutritionists, certified nursing assistants as needed
- Complementary therapists: StoryKeeper, Music and Massage therapists as needed
- Volunteers to assist as needed.
How is Care Paid For?
Medicaid and most private insurance policies cover the costs of hospice care. And again, Medicaid has a program called Concurrent Care which means the child can be eligible for aggressive treatment and hospice support at the same time.